See How Our Community is Changing Lives

I hope this message finds you well. Today, I want to share a powerful story that illustrates how our Ben’s Friends community is making a real difference in people’s lives. This story highlights why your support, whether through fundraising or direct donations, is so crucial to our mission.

Meet John:

John was born with severe type 1 Von Willebrand’s Disease (VWD) and later discovered he also had Atrial Septal Defect (ASD), a congenital heart condition. With such a rare combination of conditions, John felt isolated and unsure of where to turn for support and information.

In his words:

“Ben’s Friends is near and dear to my heart for so many reasons. I am blown away by the current and new members that I come into contact with each and every day. Some might say my story is inspirational, but I would beg to differ*. I am just one of the thousands and growing inspirational stories on Ben’s Friends.*”

John found not only support but also a sense of purpose through Ben’s Friends. He became actively involved in moderating patient communities, helping others navigate their own journeys with rare diseases.

Your Support Makes a Difference.

Stories like John’s are possible because of community members like you. By supporting Ben’s Friends, whether through fundraising or direct donations, you help us:

  • Maintain and grow our dozens of online communities for rare diseases
  • Launch new communities for underserved conditions
  • Provide vital information and emotional support to thousands patients and families

How You Can Help:

  1. Share Your Story: Consider sharing how Ben’s Friends has helped you. Your experience could inspire others to support our mission.
  2. Become a Fundraiser: Create your own fundraising page and share it with your network. It’s a powerful way to amplify our message and reach more people who might want to support our rare disease communities.
  3. Make a Donation: If you’re able, consider making a direct donation. Every contribution, no matter the size, helps ensure that no one faces a rare disease alone.

Remember, your involvement, in whatever capacity you’re able to offer, makes a real difference. Together, we can ensure that more people like John find the support and connection they need.

Become a Fundraiser - OR - Donate Today

Thank you for being an essential part of the Ben’s Friends family.

Warm regards,
Ben’s Friends Team

P.S. If you have a story about how Ben’s Friends has impacted your life, we’d love to hear it. Your story could inspire others and help us continue our mission.