Hi Everyone,
My 2 month old was diagnosed with ASD this past Wednesday. Right now our cardiologist thinks the hole could be as large as 12mm. I know absolutely NOTHING about ASD except what our cardiologist told us, and I'll be honest, I was in a state of shock when we found out something was wrong, so some reassurance would be appreciated. Right now I am scared, upset, and overwhelmed. I don't know how I'm going to get through this. The thought that something is wrong--seriously wrong--with my son is just too much for me to take. Have any of you had children diagnosed with ASD so young? What were your experiences? Please help! Thanks so much in advance...
Hi ASDMommy,
How is everything going?
This is a very overwhelming experience for all involved.
Linda
My son was diagnosed with an 17mm ASD at 9 months of age. His cardiologist has been monitoring him ever since. They chose not to have open heart surgery as the hole could potentially close on its own and they didn't want to do an unnecessary surgery. He is 8 yrs old now and the hole is smaller at 8 mm. We go back to his cardiologist in 2 weeks. (we have had bi-annual visits since age 2) I believe the plan is to finally repair the hole with the septal occluder device if he is a candidate for the procedure. If not, we are looking at OHS. He has been surprisingly healthy other than many respiratory illnesses as a baby/toddler/young child. That has slowed down tremendously over the past 3 years and he rarely gets sick. He is a very happy, energetic little boy! It is stressful when you find this out, but one thing my dr. always said, if you are going to have a heart condition (CHD) this is the one you want. It is the most treatable and the least life threatening. Do you research and ask lots of questions at your dr. visits. Best to you!