I had my ASD repaired at 16, that was 29 yrs ago. I had 3 fairly large holes. Almost immediately I began to have problems with shortness of breath, easily fatigued, chest pain dizziness and headaches. Before my closure I had suffered from headaches and what the doctors believed to be epilepsy. I would pass out or faint/black out for no reason at all. During an extensive work up after the closure a pulmonologist told me that I had pulmonary vascular hypotension. But my next doctor didn’t believe it and told me that I was making everything up. Now 29 yrs later I’m no better off than I was 1 yr after my heart surgery. My right atrium is still enlarged and I still have shortness of breath and chest pain but because of my age the doctors won’t take me seriously and the ones who do I can’t get continued authorizations from my insurance to keep seeing. I have a suspicion that depending on the age of repair and the severity of ASD and damage already done that could cause permanent damage.